My Stories


MY CLOSET OF DESIGNER LABELS CLOAKS

  By Teresa Levitch

It was a slow day of late summer, when the excitement of summer vacation transforms to long boring days. The daylight shifts every so slightly to the next season with no voice to announce it. I was in the meadow, so close to the ground that from a distance I would have been imperceptible, the wild flower, of yellow buttercups and red clover, so tall and in full bloom. My body cool and damp at my back, smelling the earth with the heat rising as I faced the sun, every pore smelling of sweat with the pure sky above; no distractions of clouds, with the 1958 sky blue crayon color of emptiness.

Being 10 years old and the oldest of eight , a time without chores or responsibilities and the luxury of daydreaming in a meadow, I decided I would change my name.

This was an idea of such magnitude that it required thought, planning, and would have to be covert. I could not pick a different sounding name that would require an announcement at the dinner table. There would be nine voices of family, like birds on a May morning, all singing with the volume increasing as disputes erupted.  I needed no advice for the decision was made.  All I needed to complete the change was the letter “e.” Terri to Terrie.

This transformation began on the first day of school. The teacher read from the attendance sheet, calling out each student’s name.  This time when she looked up, scanned the room and announced my name, “Teresa”, my answer was life changing.

“Call me Terrie.  With an E.”

Using the teacher’s red pen, my chosen name was created. I knew at that moment, I had the ability to be seen by others as I chose. I put T-E-R-R-I-E on every paper, test, and homework assignment, until I graduated high school.  Names could no longer be imposed upon me. I simply wore them like cloaks, resisting the idea that names defined who I am.  I was but the person wearing the name until it no longer gave me comfort, at which time I put it away with the others, taking it out again only as needed.

I continue to struggle creating my own identities to define the names that are given to me. I can be as soothing as the name Teresa, which rolls off the tongue. I can be as independent and strong as the name Terri, with the hard constants.  I am Mrs. Levitch, Mom, the Buddhist student, and more. These are familiar cloaks in my closet, the designer unknown, I choose to wear these often, taking care not to soil them. The seams are strong, the fabric beaded and woven tightly, with memories.  Each new name, by choice or default, is a new cloak I wear. I am able to don it when I need to be shielded from discrimination, stereotypes, or self-pity. They cover my true identity while presenting what I want to be seen. They are woven with expectations and buttons made of bone. Each one becomes infused with the colors of joyous moments shifting from pastels to the rich bold colors like magenta, and royal blue. They begin to wear and fray with the responsibility and disappointments over time, pulling at the seams.

There is one cloak that looks the oldest, in my closet of identities, although I did not wear it but for a year. The famous gene designer CANCER custom designs these cloaks. Each carefully tailored to fit only me. The label sewn to the back collar of the first is “Hodgkin’s Lymphoma.” It always irritated the soft skin at the back of my neck, causing a rash. The color no longer a muted pastel, but a blaze of colors, as a crystal creates the colors of the rainbow. Each color, reminds me of lessons learned. I am stronger than I realize. RED! There are Doctors that care. ORANGE! Life is fragile YELLOW! Health is more important than possessions GREEN! Love is most important. VIOLET! Patches of dark brown stains from the blood that came with every rolling, blown vein from the needles are found among the brightness of colors. The seams are torn with limitations in ability to function. Holes are mended with bandages and gauze. The smell of radiations burns replaces the musty odor of storage. So, it is carefully wrapped in tissue paper and placed in the back of the closet.

My other cloak by the same designer cannot be wrapped in tissue paper or put away. It has to be worn. It requires examination, at each glance of a mirror. The fit is one size too small; tight and constricting, making it hard to move, the zipper straining to close. The label on the collar is “Mastectomy”, so carefully stitched only on carefully examination one can see the material is not natural.

The last designer label cloak in my closet is CANCER SURVIVOR.  I wear it when it is necessary to hide the pain of radiation fibrosis, fatigue, and endless tests. Knowing the parts of my womanhood are gone, my breasts, uterus and ovaries, the threads stretch and become tattered, like the scars. Pity, sorrow, and fear soak into the fabric causing outlines of stains in the fabric of my life. The label sewn on the back of the collar has a loose thread flutters against the hairs on the back of my neck, like a feather, causing me to wonder if it is real.

I am still able to visit that meadow if only in my mind. In meditation, I see the sky with no distractions of clouds, as emptiness. My body feels the cool dampness of fear, but the warmth of hope rises from my pores.  I am 10 again, choosing who I want to be, no matter what label I am given or which cloak I wear, I am still Terrie.  With an E.

 

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My First Published Poem

Leaving Jackson Road

I leave my family of 10, I take being the oldest

I LEAVE THE FAUCETS OPEN DRIPPING

I leave the dinner table with 40 place settings, I take the smell of Sunday pasta sauce

I LEAVE THE FAUCETS OPEN DRIPPING

I leave the family room without enough seating, I take the feeling of human closeness

I LEAVE THE FAUCETS OPEN DRIPPING

I leave the bedroom that I shared, I take with me the secrets of my sisters

I LEAVE THE FAUCETS OPEN DRIPPING

I leave the isolation of the location, I take with me the wide-open spaces

I LEAVE THE FAUCETS OPEN DRIPPING

I leave the barn with the hole in the roof, I take with me the smell of fresh-baled hay

I LEAVE THE FAUCETS OPEN DRIPPING

I leave the bathroom confusion getting ready in the morning,I take with me my ability to think in a crisis

I LEAVE THE FAUCETS OPEN DRIPPING

I leave taking care of someone else’s child, I take with me my compassion.

I LEAVE THE FAUCETS OPEN DRIPPING CONTAMINATED WATER

I TAKE CANCER FROM DRIPPING FAUCETS

This appeared in the January Issue of Chronogram– Life in the Hudson Valley – 2013

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I am pleased to include the writing of guest blogger Cameron Von St James. He is an advocate for the Mesothelioma Cancer Alliance. He talks about his wife’s diagnosis during the Holiday Season looking back at that time.

THE HOLIDAY SEASON AND A CANCER DIAGNOSIS

I have always looked forward to the holiday season. I enjoy the time spent with family and friends, being appreciative for all that we have and participating in the different activities and traditions that have been passed down from generation to generation.

In 2005, my wife and I were particularly excited about the upcoming holiday season because our daughter, Lily, had just been born that August.  The birth of our daughter was such an exciting time, and we were especially looking forward to her first Christmas. Our excitement and happiness did not last long, however, because three days before Thanksgiving, we received terrible news. Heather had been diagnosed with malignant pleural mesothelioma.

The minute that I heard the word mesothelioma, I knew that it was cancer and I immediately began to worry. Our daughter was less than 4 months old, and I could not imagine living a life without my wife or raising our daughter without her. From that point on, I did not feel excited about the holidays and I really did not feel thankful for anything. I tried to stay positive, but somehow all I could picture was the worst: single father, raising a daughter who would never really know her mother, and me a widower.
Shortly after Christmas, we would be going to Boston, where Heather was to receive her treatment. Despite the news, we did our best to carry on as usual through the holidays. We were not in the mood to celebrate, but the family gathered anyway, and they spent Christmas with us as well. So there we were, all of us just sitting there at the table discussing our options. We knew we would now be reduced to a single income and the list of expenses was continuously growing. It was a challenge to keep up with it all. We discussed which of our assets we could liquidate to stay afloat, and how much my in-laws could afford to help us pay.  I was embarrassed and ashamed, and felt like I had failed as a husband and father.  I was feeling like I had very little to be thankful for. It would be many years before I could look back on that day and see just how wrong I was.

It has since been nearly seven years since the initial diagnosis. It may have taken me a while, but I can say I absolutely had very much to be thankful for in that moment. We had the support of family and friends who cared. They were willing to do whatever they could possibly do to help us.  They dropped everything to be by our sides, and were ready and willing to make incredible sacrifices of their own for us, without a moment’s hesitation. I was blinded by my pride and my sorrow a the table that Thanksgiving, but it is easy to see now that my wife and I were lucky to have such a fantastic support system.

This whole experience has taught me to never take the good things in my life for granted.  Now that the holiday season has arrived once again, I want to reflect on all that I am thankful for. I am thankful for having a great family, along with great friends. I am also thankful for Lily, our beautiful daughter. I am also sincerely thankful to all of those who were there for our entire family during such a trying time. I will forever be thankful because I can celebrate the holidays again and enjoy them. Despite the overwhelming odds, Heather was able to become one of the blessed few who beat mesothelioma, and we have celebrated during the holiday season each year since.  We hope that our story can be a source of hope and inspiration to all those currently fighting cancer this holiday season. 

Cameron is married to Heather Von St. James, survivor advocate for the Mesothelioma Cancer Alliance, and father to Lily Rose. Graduated with a B.A. in Science in Information Technology. He now works for US Bank.

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